It feels like yonks since I kicked off this blog now. And admittedly, I’ve been a tad all-over-the-place with it! Why? I think it’s cause I’m still figuring out what I want to write about, how I want to talk about it, why I’m doing it, and whether I can keep doing it for the …
Blimey – how did we get here? That’s the kind of thing I say often with this illness of mine. How the hell did so much time pass so quickly?! But we all know it did, so let’s crack on. Or crack a nut. It’s almost Christmas after all! Christmas and chronic illness… Christmas is …
So I’ve just realised: I haven’t even given you guys a recap of my personal journey! How on earth did I forget that? It’s a good question, though – and one you’re totally entitled to ask. Why am I even writing any of this in the first place? Certainly not for fun, I tell you …
Holy Crap, It’s Been A Long Road: My Journey With Chronic Illness So Far Read More »
It’s been three months since I’ve posted! Blimey 😅 I take it I’ve been doing something wrong – or something, right? It’s probably a little of both – because I’ve certainly been busy… Anyway – here’s an update! I played a gig! For the first time in…years! I’ve been taking part in a social music …
Okay – let’s swerve off-topic for a mo! Although that’s a lie: because I chose the branding that I did for this place for a reason. Let me explain! Chronic Illness is by its nature a gloomy affair: I wanted to buck that concept I’m sure we all know how tough and difficult living with …
Paint It Bright! The Whys Behind The Breaking The Wall Branding Read More »
I’ve always loved music. It’s a powerful tonic for me – mentally, physically and emotionally! As a kid, I loved orchestral movie scores, music videos, and the occasional pop song. As a teen, I fell in love with rock, musical rebellion and the shimmer of a great guitar. As an adult, I still love all …
How Music Helps Me Battle My Pain Levels – and A Little Science to Back It Up! Read More »
So, let’s start with the obvious: if you have chronic fatigue yourself, you’ve probably heard of – or even been recommended – the dreaded Graded Exercise Therapy. I remember when I was first diagnosed and started to look at what action I could take to ease my symptoms. And that was one of the top …
Rediscovering Physical Activity With Chronic Fatigue: Walking The Terrifying Tightrope! Read More »
Let’s kick off with some candid honesty: just the idea of starting a blog was terrifying for me! Why? Well I’d be putting myself out there in the world – on the internet! – and talking about something that’s very personal to me. But I knew I wanted to start. And if I wasn’t prepared …
The Pressure: My Worries and Fears About Keeping A Chronic Illness Blog Read More »
So, this piece was inspired by a question I ponder often: What if I could jump back in time, and give myself some quick and efficient advice? What would I say to alter my personal timeline with chronic illness, to perhaps change the experience for the better? I tried to keep a quick pace when …
If I Could Turn Back Time: The Advice I’d Give My Early Chronic Self Read More »
Who are we, without what we ‘Do?’ It’s a big question, right? And one I’ve considered often. And it used to lead me to despair – and a spiral of fear and depression. Here’s why! Picture this: You’re out and about – perhaps a rare thing, as it often is with a long-term disabling illness. …
